Sotos Syndrome Survey Analysis

Number of females 28 Number of males 33 Total individuals 61 Total number of families 60 - - (One familiy has twins) Vision problems Count   Percent * Normal 26 43% * Some problem 24 39% * Serious problem 11 18% [Comments] Tooth problems Count   Percent * Yes 45 74% * No 15 25% [Comments] Foot and walking problems Count   Percent * Yes 48 79% * No 12 20% [Comments] Nose bleeds Count   Percent * Normal 37 61% * Problem 24 39% [Comments] Tantrums Count   Percent * Normal 17 28% * Some Problem 14 23% * Serious Problem 29 48% [Comments] Other medical problems Ear infections Count   Percent * Reported 35 57% * Not reported 25 41% [Comments] Upper respiratory problems Count   Percent * Reported 40 66% * Not reported 20 33% Sleep Count   Percent * Normal 27 44% * Problem 34 56% [Comments] Allegeries Count   Percent * Yes 25 41% * No 35 57% [Comments] Bowel movement problems Count   Percent * Normal 26 43% * Some Problem 13 21% * Serious Problem 21 34% [Comments] Behavior Count   Percent * Normal 11 18% * Problem 50 82% [Comments] Siblings * Ave. # children in family 2.4 * # of families with twins 6 * 1-child families 13 * 2-child families 21 * 3-child families 20 * 4-child families 5 * 5-child families 2 * 6-child families 0 * 7-child families 0 Diagnosis Count   Percent * Sotos 51 84% * Sotos-like 8 13% * Other 2 3% More Sotos in family? Count   Percent * No 56 92% * Maybe 2 3% * Yes 1 2% [Comments] TV watching Count   Percent * Doesn't like 5 8% * Normal 25 41% * Excessive 29 48% * Controlled by parents 12 20% [Comments]

In these tables, I attempted to interpret the written descriptions provided in the survey to assign a level of severity. Clearly, this is very subjective. However, I believe the results give a general indication of some of the problems accompanying Sotos syndrome. Again, while there are some very clear problems, such as dental and behavioral, it is significant that some of the Sotos children do not have them. There was no area in which 100% of the survey respondants reported the same result.

Many of the survey questions had a space for open-ended comments and most respondants took advantage of this. For each area, such as nose bleeds, the comments have been extracted to a separate web page. To see them, click on the highlighted word "Comments".

Under the category of "Other Medical Problems", I noticed a large number of responses that mentioned ear infections and upper respiratory infections so I made counts of these items.

Under "TV Watching", I went thru the comments and judged whether the child paid little attention to TV, was a "normal" child (which, unfortunately, implies a lot of TV watching), or was obsessive about TV (or video) watching. I also recorded whether the parents indicated that TV watching was restricted in any way. (Since this was not explicitly asked, it's likely that the number of parents who restrict TV viewing is higher than I indicate.

Note that in some cases, the reported percentages do not add up to 100%. This simply means that a few people did not respond to that question.